The Phoenix

On October 20th 2011 my fiancé took it upon himself to burn down our home. I was inside at the time, along with our three dogs. The day after, The Chester Chronicle reported the incident:

http://www.chesterchronicle.co.uk/news/chester-cheshire-news/firefighters-battled-blaze-ripped-through-5187729

Fire

Two years later, I find it utterly bizarre to read this, to recall that night, and what it felt like running back in through the smoke, after I’d already got out with Dexter, to get Scruffy and Stout, the two dogs that remained inside, trapped upstairs and terrified. I read the words, and I know I was one of the people put in the back of an ambulance, oxygen mask forced over my mouth, and told over and over again ‘just breath normally’.

How do you breath normally when your life is going up in flames?

What is the normal method of breathing through such an event?

I remember very little of the immediate aftermath. I know I stayed with my brother for a few days. I recall I had bright pink hair at the time, because my mum sent me to the hairdressers two weeks later to have it dyed a ‘normal’ colour; my Nanny had passed away, and I couldn’t go to her funeral with pink hair.

I had them dye it black.

I recall her funeral with perfect clarity, watching her coffin drop into the ground, and thinking she would smile at the irony, for the gerbera I dropped in on top of her were the exact shade of pink my hair had been, not two days previously.

Shortly after that I broke up with my fiancé. This was, in hindsight, something I had been wanting to do for a very long time but felt utterly incapable of managing. For the most part this was due to the fact I felt unable to cope alone. I was terrified of being by myself, something I now know was due to the extended periods of acute depression I was suffering at the time. From a practical perspective, I couldn’t afford to leave, I had nowhere to go and no means of funding a new flat, having given my own up when I moved in with him. This again, was in large part due to my bipolar and the horrendous spending sprees I had been on while manic. From a purely emotional standpoint, I was prevented from leaving long before the fire forced me to go, when he was diagnosed with cancer. By that point I had already realised it was an extremely unhealthy relationship, that he couldn’t be trusted in anything, and that the only thing I wanted to do was leave. Unfortunately, I was penned in. I had no money, I had nowehere to go, I wasn’t well enough to be on my own and, now, I felt it would make me an unbelievably terrible person if I left. He had cancer. How do you leave a person who has cancer? It doesn’t matter how badly they treat you, they have cancer, and everything seems to come back to that.

The situation became so bad I tried (once again) to kill myself and, that time, I very nearly succeeded.

I was afraid of doing the one thing that would actually have allowed me to extricate myself from that situation: moving back in with my mother.

The fire forced that decision upon me. I quite literally had no choice, as my brother was unable to house me permanently. Once I was there, the thought of ever going back to him was simply absurd. Months later, I would come to terms with the reasons I had ended up with him in the first place, but in the immediate aftermath of the fire, I was too numb to think.

Self Harm That was the worst time of my life. I was fortunate it was winter and everyone expected me to wear long sleeves, for my arms were covered in burns, a nasty habit I have when thoughts and emotions over-run my head. You can still see the scars. Most of them are a livid white, others are now fading.

By Christmas I was on strong medication for the first time, and adjusting to that was an ordeal in itself. For the most part, the MEDs made me sleep. That is, I think, all I remember about the first half of 2012, the persistent need to sleep. Even when I was awake, I was barely with it. I did nothing but watch DVD box sets, since I couldn’t abide silence, and I couldn’t muster the impetuous or energy to do anything else.

Thanks to the cyclic nature of my condition there was the odd week or two when I flipped the other way. These times were no better. In many ways, they were worse. I went on outrageous spending sprees with money I didn’t have. I worked endlessly on my novel without sleeping or eating for days, sometimes weeks at a time, a total contrast to my previous state.

It has been a long, incredibly slow, unbelievably hard road from there to here, and still I have days when I feel nothing is going right in my life. Still I have the knowledge that I’m in terrible debt, unable to move out, struggling to manage my bipolar, but these things are no longer as impossible to deal with as they once were. Thanks to a debt management plan I am slowly sorting my financial situation out. Now that I am actually employed I am beginning to see the potential to move out some time in the relatively near future. And while my bipolar is by no means ‘better’, I do have a much better handle on it than I did two years ago.

I’ve not had to cover burns for a long time now.

This is an irony that hasn’t escaped me, the fact my chosen form of self harm has—since I was a teenager—been burning. It’s a slightly odd one, different to the majority who tend to cut. I never actually considered why I chose burning over cutting, I’m fairly certain it wasn’t a conscious decision I ever made. Yet here I am, fifteen years later, burn scars on my arms and abdomen and the majority of those possessions remaining to me ruined by fire.

The fire.

I used to think of the fire was the worst thing that had ever happened to me. It had left me homeless, ruined everything I owned, forced me to do what was perhaps the one thing I feared most in life—moving back in with my mother—and it had left me feeling even more alone than ever.

With my life quite literally in ashes and no choice but to place myself in my mother’s care, I ended up doing the one thing that actually enabled me to overcome the most difficult obstacles I faced at that point in my life. I left my fiancé and by so doing a relationship that was more unhealthy for me than anything else I have been through, and that’s saying a lot. It saddens me to  think that, were it not for my bipolar, there is no way I would ever have ended up with that man, no way I would ever have stayed with that man as long as I did, no way I would ever have allowed that man to treat me the way that he did. it terrifies me to think that, due to my bipolar and his cancer, I would in all likelihood still be with him now, stuck there, unable to move forwards with my life, unable to get any better. The alternative, is that I would finally have succeeded in killing myself.

After the fire I was living with someone responsible, able to monitor me and ensure I was reasonably okay. I began regular counselling and therapy, got on to proper MEDs and, eventually, plucked up the courage to tell my CPN that the psychiatrist I was seeing was not right for me at all. I asked to see someone new, who suggested a whole different course of treatment and, since then, my recovery has been coming on in leaps and bounds, and while that may be interspersed with periods of inactivity and depression, there has been nothing as extreme as that which I was experiencing in 2008 to 2011. My thesis is now edging closer to completion, and my novel has an agent and has been re-drafted into something of which I am truly, very proud. Add to this my other ventures and you begin to see that none of these things would have been possible were it not for one, single, defining moment in my life, when everything was scorched clean and there was nothing left but the potential for new growth.

I used to think the fire ruined my life.

Now I think it saved it.

 Phoenix

Autumn Showers …

DepressedOne of the worst and perhaps least understood aspects of my condition is the recurring, and often debilitating, inability to perform everyday tasks. I recently read Marian Keyes’ The Mystery of Mercy Close and was very impressed with the way she laid her own experiences with depression bare. I did however feel that she sugar coated one aspect; the main character’s inability to maintain her personal hygiene. In the novel, Helen is very aware of how often she bathes and whether or not she has done so in the last twenty-four hours. When she hasn’t, she often relies upon people to press her into doing so. This is one area where my experience of depression does not match with Marian’s description.

I love showers. I find there is nothing better. Scorching water that’s just slightly too hot, that you leave running so long the whole room becomes a sauna; shower gels in a variety of flavours that leave your skin smelling and feeling great; shampoo, conditions, the feeling of freshly shaved legs against your pjs when you fall asleep at night. Taking a long shower is one of my favourite things to do, especially when I’m not in a good mood. Water washes away all manner of troubles.

You can imagine then how upsetting it is for me, to come back to my senses one day and discover, based on the state of my hair and the less than pleasant aroma emanating from my own body, that it has clearly been days since I last took a shower. Again.

This often happens when I am in my depressed cycles. It happened again today, when I realised that it was (to my shame) at least a week since I last took a shower.  The very thought of this disgusts me and I find it a less than pleasant thing to admit to, however it fits with a pattern of behaviour I notice at times like this. For example, I also realised today that I neglected to post a blog last Sunday. I began writing it—a rather humorous anecdote about an ill-fated trip to Ikea for some new office furniture—but in the days between then and now I have somehow managed to forget to do it.

Losing My MindShowering is much the same. Unlike Helen, in Keyes’ novel, I am unaware for long stretches that I have forgotten to do common things like shower, eat, sleep, brush my teeth, leave the house, take my MEDs. The latter is particularly problematic, as failing to take my MEDs properly only makes everything worse. It is as if my mind crumbles and those parts that retain the information that tells me what I’m supposed to do in a day, are blowing away on the wind.

There are times when this condition of mine leaves me trapped in a loop. I sleep, I wake, I endure an indeterminate number of hours before once more falling asleep and repeating. What I do in my waking hours is extremely limited, firstly by my energy levels, which are almost non-existent, and secondly by the simple will to do things. I find it difficult at these times to do anything, even things I know to be very important, such as work, meeting deadlines, and keeping appointments.

I believe this is one of the hardest things for people who don’t suffer from any form of mental health illness to understand. It can appear to the outside observer to be laziness. I even berate myself on occasion for being ‘so lazy’, yet it is not always that I don’t wish to do things, but more that I find I can’t muster the impetous to do them even when I want to. Sometimes even when I desperately want to. It has taken me all day to manage to have a shower and write this (brief) post. Why? My mind is scattered. It is difficult to retain a thought for long enough to follow through on it, especially when it involves expending energy, which I have in very short supply.

People often try to ‘help’ when I’m like this, by insisting I ‘get out more’ or refuse to allow me my creature comforts (in my case DVDs) unless I get in the shower. Sometimes it works. Most often it just makes me feel worse.

The furniture I bought last week remains partially constructed in my office. The contents of my office are currently all over the house, making a terrible mess which is stressing me out no end. I can’t abide it. Yet I do not have the energy to finish putting that furniture together. I keep walking into the room, picking up a bit of shelf, staring at it vacantly for half and hour or so, then replacing it exactly where it was before and walking out again. As I recall, this happened once when I moved house. It took six months for me to unpack anything. I existed in a state of perpetual stress because every time I moved in my minuscule flat I fell over something, and yet I could not bring myself to do anything about it.

Since turning twenty-eight earlier this year I have found myself contemplating more and more the achievements I have made in life. As I approach thirty, I find I am deeply unsatisfied with what I have ‘achieved’. In fact, when I look back on where I was in my life ten years ago and compare it to now, I find that—with the exception of a University education I seem unable to complete at present—I have nothing to show for my time. I wonder how much more I would have to show for my time, had I not so often been hindered by this state of what I have come to see as ‘pause’. I feel as if someone has pressed a remote and paused me, while the rest of the world continues unobstructed. I still move, but so slowly that it is barely noticeable, so sluggishly that I am unable to think properly.

It took me all day today to have a shower, and write this post.

I count that as a win, it’s better than I’ve done for the last week, yet still it’s pathetic.

Here’s to better days, and managing to get more done.